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Use of personal health information and biological samples for health research and planning: Themes from a series of deliberative dialogues |
This presentation will cover a series of case-based deliberative dialogues conducted with the public and researchers, data custodians and regulators to determine areas of consensus and divergence on the conditions under which personal information and biological samples could be used for scientifically valid research and planning.
The issues addressed include:
· consent and privacy
· models of governance
· necessary safeguards |
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Presenter: Don Willison
Don Willison is a senior scientist at Public Health Ontario (PHO). He holds associate professor (status-only) positions in the Department of Clinical Epidemiology and Biostatistics at McMaster University and at the Dalla Lana School of Public Health at the University of Toronto. A key focus of his research is in the area of governance over the use of personal information and biological samples for health research.
More specifically, this has included:
· research ethics board policies on the topic
· notification practices of academic health care facilities regarding use of
personal information in their custody
· public attitudes and deliberative dialogues regarding use of personal information
and biological samples for health research |
For more information and to register for the conference, please visit http://ethicsnow.eventbrite.com/ |
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DISCLAIMER: The opinions expressed by speakers and moderators do not necessarily reflect the official policies or views of Public Health Ontario, nor does the mention of trade names, commercial practices, or organizations imply endorsement by Public Health Ontario.
Questions
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Public Health Ontario is committed to complying with the Accessibility for Ontarians with Disabilities Act (AODA). If you require accommodations to participate in this event, please contact 647-260-7100 or learning@oahpp.ca.
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